Recently, a global effort kicked off to start radical conversations around the end of life experience. It’s launching on OpenIDEO (an open innovation platform) in partnership with Sutter Health and the Helix Centre and will lead a global community through collaborating with each other to design new ideas for enhancing the personal experience of death and dying.
The question being asked: How might we reimagine the end-of-life experience for ourselves and our loved ones?
All people who have thought about this important issue are encouraged to participate in this global movement. The Inspiration phase of the challenge is now open for stories and the challenge will be collecting new posts.
This OpenIDEO challenge is an inspiring place to collaborate with people from around the world on this topic, collectively improve new ideas, get feedback from experts and potentially get a fresh idea off the ground. It’s also a place to boost your creative problem solving skills.
Learn more and participate in the End-of-Life Challenge.
Wednesday, May 25, 2016
Thursday, May 19, 2016
Early Palliative Care Provides Important Benefits for Family Caregivers of Patients with Cancer reports ASCO
A press release from the American Society of Clinical Oncology reports on this new study.
“Caregivers provide critical support for patients with cancer, but it can take a heavy toll. This study shows that early palliative care, although designed for and directed at patients, can also help ease the burden on their caregivers,” said ASCO President Julie M. Vose, MD, MBA, FASCO, ASCO President. “This insight contributes to the large and growing body of evidence supporting early palliative care for patients with advanced cancers.”
A randomized clinical trial found that introducing palliative care shortly after a cancer diagnosis results in better quality of life and fewer depression symptoms for family caregivers. According to the authors, the study is the first to show that early palliative care alone for a patient with cancer can have a strong impact on family caregivers. The study was featured in a press briefing May 18, 2016 and will be presented at the 2016 American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago.
“This study suggests that early palliative care creates a powerful positive feedback loop in families facing cancer,” said lead study author Areej El-Jawahri, MD, Director of Bone Marrow Transplant Survivorship Program at Massachusetts General Hospital Cancer Center. “While patients receive a direct benefit from early palliative care, their caregivers experience a positive downstream effect, which may make it easier for them to care for their loved ones.”
Read the full ASCO press release.
View the full abstract
“Caregivers provide critical support for patients with cancer, but it can take a heavy toll. This study shows that early palliative care, although designed for and directed at patients, can also help ease the burden on their caregivers,” said ASCO President Julie M. Vose, MD, MBA, FASCO, ASCO President. “This insight contributes to the large and growing body of evidence supporting early palliative care for patients with advanced cancers.”
A randomized clinical trial found that introducing palliative care shortly after a cancer diagnosis results in better quality of life and fewer depression symptoms for family caregivers. According to the authors, the study is the first to show that early palliative care alone for a patient with cancer can have a strong impact on family caregivers. The study was featured in a press briefing May 18, 2016 and will be presented at the 2016 American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago.
Read the full ASCO press release.
View the full abstract
The study will be presented at the 2016 American Society of Clinical Oncology Annual Meeting. |
Tuesday, May 10, 2016
The Gentle Art of Teaching Hospital CEOs
One of the challenges for hospice and palliative leaders has always been that their services were seen as a small part of the healthcare continuum. Over and over, I’ve had hospice CEOs and administrators tell me their greatest frustration was getting the time of day from hospital and health system execs.
Lately, however, I’m not hearing
that as much. Instead, I hear clients and friends telling me their local system
seems interested in post-acute care in a new way. In January of this year, the
Society for Healthcare Strategy & Market Development published results from
a survey of hospital and health system executives, CEOs and CFOs, mostly. They
were asked, “How likely is it that by 2021, the proportion of your hospital or
health system’s expenditures devoted to post-acute care capabilities
(palliative care, hospice, or skilled nursing) will increase?” Fully 92% of
them said it was Likely. 54% of them even said “Very Likely.”
The reason for this new
attention to post-acute care is that new payment incentives are strongly
encouraging acute care providers to care about what happens after patients are
discharged from the hospital more than ever before. This hasn’t always been the
case. Jeff Goldsmith, the well-known healthcare futurist, recently wrote about
this issue: “Traditionally, the hospital’s responsibility ended abruptly upon
discharge. In candor, the discharge process often was not focused on patient
outcomes. In many institutions, the main focus was on clearing the bed and
making sure the patient had a safe ride home.”
Now however, inattention to what
happens immediately after an acute care episode can cost the hospital, health
system or ACO money. If the patient comes back as a re-admission or Emergency
Department visitor, that’s bad, not only for the patient, but also for the
at-risk provider’s bottom line.
Cost avoidance is the name of
the game, and post-acute care is finally getting its due as a key component in
improving outcomes and reducing costs. Unfortunately, that doesn’t always mean
that the hospital CEOs know clearly what they want or need from hospice. Nor
does it mean they always have a good understanding of why hospices can make
vital partners in a health system’s efforts to reduce costs of care.
Hospice leaders may find
themselves in the position of (gently) helping their local hospitals and health
systems to understand the new imperatives of managing costs when revenue is at
risk. After all, managing patient costs on a fixed payment is something that
the hospice industry has been doing since 1983.
This post is a preview from a longer article on working with ACOs and
hospitals that will appear in the Summer edition of NHPCO’s Newsline out June
15.
Sue Lyn Schramm, MA
Director, Consulting Services, NHPCO
Director, Consulting Services, NHPCO
Tuesday, May 3, 2016
Virtual Conference Call for Posters Extended
The National Hospice and Palliative Care Organization, American Academy of Hospice and Palliative Medicine, and Hospice and Palliative Nurses Association will host the 2016 Virtual Conference, Complex Challenges on the Front Lines: Effective Approaches to Complex Cases, from August 9 – 11, 2016.
The call for poster presentations for the 2016 Virtual Conference has been extended to May 31, 2016. Posters submissions should outline approaches and solutions to clinical challenges that hospice and palliative care professionals face in their work with patients and families.
Hospice and palliative care practitioners and researchers are encouraged to be a part of the conference’s expert and distinguished faculty by submitting a poster presentation. Presenters are not required to be present. A sample of one of the poster presentations from the 2015 Virtual Conference is available online.
Learn more about the Virtual Conference Call for Posters online, including the conference learning objectives.
The call for poster presentations for the 2016 Virtual Conference has been extended to May 31, 2016. Posters submissions should outline approaches and solutions to clinical challenges that hospice and palliative care professionals face in their work with patients and families.
Hospice and palliative care practitioners and researchers are encouraged to be a part of the conference’s expert and distinguished faculty by submitting a poster presentation. Presenters are not required to be present. A sample of one of the poster presentations from the 2015 Virtual Conference is available online.
Learn more about the Virtual Conference Call for Posters online, including the conference learning objectives.
Registration for the 2016 Virtual Conference is open.
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