Te National Hospice and Palliative Care Organization released a new video today as part of the “Moments of Life: Made Possible by Hospice” public awareness campaign. The video features Lyle Romans, a 21 year-old with terminal lung disease and dermatomyositis. “Lyle’s Hawaiian Dream” shows Lyle and his foster family on a journey from his home in Oregon to the beautiful beaches of Waikiki, Hawaii. His trip was made possible by Dream Foundation, the only national dream-granting organization for terminally-ill adults.
Lyle, who has lived with the Dobbs family since he was 18 years-old, was an active teenager. In his senior year, he was diagnosed with lung disease and since then his health has continued to decline. He has lost 80% of his lungs due to scarring and cysts. He no longer has the ability to walk or move his neck and he is losing his sight. Lyle’s dream was to go to Hawaii to see and experience the natural beauty of the islands before his sight was completely gone. Dream Foundation stepped in to make Lyle’s Dream of a Hawaiian vacation a reality. Lyle and his family visited the island of Oahu in June.
In the video, Lyle can be seen enjoying the sights of Oahu including the famous Halona Blowhole and Sea Life Park Hawaii. Palliative care helped stabilize Lyle enough to be at home with his family and strong enough to enjoy this trip.
Lyle’s video is part of the “Moments of Life” public awareness campaign launched by the National Hospice and Palliative Care Organization in 2014. The campaign features stories from hospices and palliative care programs across the United States of patients and families experiencing hospice and palliative care first hand. The “Moments of Life” website has information available on palliative care.