Showing posts with label coping. Show all posts
Showing posts with label coping. Show all posts

Tuesday, November 23, 2010

Don't Wait to Talk About Hospice

With Release of PBS FrontlineSeries and Dartmouth Atlas Report, NHPCO Reminds People of the Importance of Advance Care Planning

(Alexandria, Va) – An intimate journey into the edge of life is how this evening’s episode of the PBS series Frontline has been described. Frontline’s "Facing Death" will air this evening (11/23/10) at 9:00pm on most PBS stations.

In this groundbreaking film, doctors, patients and families at one of New York’s biggest hospitals speak with remarkable candor about the increasingly difficult choices people are making at the end of life: when to remove a breathing tube in the ICU; when to continue treatment for patients with aggressive blood cancers; when to perform a surgery; and when to call for hospice.

This follows the release of a report from the Dartmouth Atlas Project looking at care for patients with advanced cancer at the end of life that identified gaps between patient wishes and care received.

The National Hospice and Palliative Care Organization urges members of the public to learn about advance care planning and discuss wishes with family members.

“It’s an all too common situation. A family is at the bedside of a loved one who is seriously ill and nearing the end of life,” remarked J. Donald Schumacher, NHPCO president and CEO. “Each member of the family has a different idea of what should be done and what the patient would have wanted.”

Far too many people wait until they are in the midst of a health care crisis before thinking about what options are available or what care they or their loved ones would have wanted. Hospice professionals deal with these challenging situations every day – that’s what they are trained to do.

When a family is coping with a serious illness and a cure is no longer possible, hospice provides the type of care most people say they want at the end of life: comfort and dignity. Considered to be the model for high-quality, compassionate care for people with a life-limiting illness, hospice care includes expert medical care, pain management, and emotional and spiritual support. Care is provided by an inter-disciplinary team of professionals and trained volunteers. The wishes of the patient and family are always at the center of care.

Most hospice care is provided in the home – where the majority of Americans have said they would want to be at this time. Care is also provided in nursing homes, assisted living facilities, and hospice centers.

Care is paid for by Medicare, Medicaid, and most private insurance plans and HMOs.

The National Hospice and Palliative Care Organization reports that more than 1.56 million people received care from our nation’s hospices last year.

Hospice providers can help with information about care options and choices and ensure you live as fully as possible throughout your entire life. They will make sure your loved ones receive support as well.

One of the best ways to make sure you and your loved ones benefit fully from hospice, should you ever need this care, is to talk about it before it becomes an issue.

For more information on advance care planning and hospice, visit NHPCO’s Caring Connections at caringinfo.org or call the HelpLine at 1-800-658-8898.

Caring Connections is one of the recommended resources included with the education tools PBS has made available online for “Facing Death.”

-###-

Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Tuesday, March 3, 2009

NHPCO Responds to Misleading Associated Press Quote

NHPCO Comments on Misleading Quote in Associated Press Article and Provides Helpful Information
Hospice is about Living Life as Fully as Possible

(Alexandria, Va) – The National Hospice and Palliative Care Organization wants all people to know that hospice delivers the highest quality care and services to patients and family caregivers who are coping with life-limiting illness. A recent article carried by the Associated Press (“Assisted Suicide Presents Legal Quandary,” by Greg Bluestein, 03/02/09) carries a misinformed quote from an attorney who incorrectly compared hospice to suicide. This remark was incorrect and demonstrates a lack of understanding about the hospice philosophy of care.
“Hospice compassionately cares for people who are near the close of life – but hospice isn’t about how you die, it’s about how you live. Hospice and palliative care focuses on how dying persons and their loved ones live each day, providing comfort and guidance along the way,” said J. Donald Schumacher, president and CEO of National Hospice and Palliative Care Organization. “The quote from that news article demonstrates a callous disregard for all those who receive care, including family caregivers, from our nation’s hospice programs.”
Hospice is widely recognized as the model for quality, compassionate care for people facing a life-limiting illness or injury. Hospice and palliative care involve a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the person’s needs and wishes. Support is provided to the person's loved ones as well.
“A common misconception people have is that hospice means you’re ‘giving up’ or ‘that there’s nothing left for the doctor to do,’ and that’s absolutely wrong. Hospice is not about giving up but is about maximizing the quality of life, no matter how long that might be,” Schumacher said.
When cure is no longer possible, hospice provides the type of care most people say they want at the end of life – comfort and quality of life. The most common statement made by families who chose hospice for their loved one is, “we wish we had known about hospice sooner.”
  • Hospice focuses on caring, not curing and, in most cases, care is provided in the person’s home.
  • Hospice care also is provided in freestanding hospice centers, hospitals, and nursing homes and other long-term care facilities.
  • Hospice services are available to patients of any age, religion, race, or illness.
  • Hospice provides bereavement support to families for 12 months following the death of their loved one.
  • Hospice care is covered under Medicare, Medicaid, most private insurance plans, HMOs, and other managed care organizations
  • Research has shown the Medicare beneficiaries that opted for hospice care as opposed to other medical interventions when faced with a terminal illness lived on average 29 days longer than those who did not receive hospice care.

Foundational values of NHPCO include universal access to high quality hospice and palliative care, fully informed decision-making, mitigation of unwanted suffering, non-abandonment and support for the bereaved. NHPCO would encourage all those struggling with serious and life-limiting illness to fully explore hospice and palliative care services before they find themselves in a crisis situation involving options for care of a dying loved one. To learn more about hospice and palliative care, dealing with pain, and advance care planning, visit NHPCO’s Caring Connections at http://www.caringinfo.org/oror call 1-800-658-8898.

-###-


Note: NHPCO’s position statement and narrative on physician assisted suicide is available via the Communications section of NHPCO’s Web site.

Media Contact: Jon Radulovic

NHPCO, Vice President of Communications

703-837-3139

jradulovic@nhpco.org


For more information visit, http://www.nhpco.org