Elizabeth Edwards Presented with Person of the Year Award

Elizabeth Edwards Presented with Person of the Year Award by National Hospice and Palliative Care Organization at National Conference

(Alexandria, Va) – Minutes after Elizabeth Edwards was presented with NHPCO’s Person of the Year Award, she took a moment at the podium to look at her notes as a shout came from the audience, “We love you!” A wide smile brightened her face as the audience of 1,600 broke out in spontaneous applause, filling the room with positive energy and optimism that was reinforced by Edwards’ remarks.

Edwards received NHPCO’s Person of the Year Award in recognition of her work as a fierce advocate for improved and accessible healthcare. In addition, she was acknowledged for her courage in the face of serious illness and life’s challenges and her willingness to share lessons learned from her experiences.

J. Donald Schumacher, NHPCO president/CEO, honored Edwards at the April 23rd opening session of the organization’s annual Management and Leadership Conference in Washington, DC.
The Person of the Year Award honors an individual outside of the hospice and palliative care community who is a true supporter of the hospice cause.

“Mrs. Edwards is rallying for changes to the healthcare system that will improve access, quality and—for those facing the end of life—comfort and dignity. Her personal experience in coping with cancer, caring for aging and ill parents, and her professional work in the legal and policy areas have made her a passionate proponent for change,” Schumacher said in his introduction.

A key message Edwards brought to the assembled leaders from hospice and palliative care programs across the nation was the obligation we all have of making sure that every American gets the care they need, when they need it, wherever they are.

Edwards stressed that an individual facing illness should never be defined by his/her medical condition. This philosophy—that puts the person at the center of care and emphasizes the dignity and individuality of all people—is one shared by hospice and palliative care providers.

A poignant moment came at the conclusion of her plenary address when she said she knew that one day she would need hospice care as a patient, and she thanked the attendees and all hospice professionals who care so compassionately for patients and families at the end of life.

She received a standing ovation and then graciously spent the next two hours signing autographs and copies of her book, Saving Graces: Finding Solace and Strength from Friends and Strangers.

Edwards served as the Honorary Chair of the National Hospice Foundation gala held the following Friday evening, which was attended by 600 guests. NHF’s annual gala is a philanthropic event supporting efforts to expand and improve care at the end of life.

As attention turns to the release of her new book and her publicized appearance on Oprah, NHPCO salutes Edwards for her efforts to advance care and compassion.

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Contact:

Jon Radulovic

Vice President, Communications

703-837-3139

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org

NHPCO Responds to Misleading Associated Press Quote

NHPCO Comments on Misleading Quote in Associated Press Article and Provides Helpful Information

Hospice is about Living Life as Fully as Possible

(Alexandria, Va) – The National Hospice and Palliative Care Organization wants all people to know that hospice delivers the highest quality care and services to patients and family caregivers who are coping with life-limiting illness. A recent article carried by the Associated Press (“Assisted Suicide Presents Legal Quandary,” by Greg Bluestein, 03/02/09) carries a misinformed quote from an attorney who incorrectly compared hospice to suicide. This remark was incorrect and demonstrates a lack of understanding about the hospice philosophy of care.

“Hospice compassionately cares for people who are near the close of life – but hospice isn’t about how you die, it’s about how you live. Hospice and palliative care focuses on how dying persons and their loved ones live each day, providing comfort and guidance along the way,” said J. Donald Schumacher, president and CEO of National Hospice and Palliative Care Organization. “The quote from that news article demonstrates a callous disregard for all those who receive care, including family caregivers, from our nation’s hospice programs.”

Hospice is widely recognized as the model for quality, compassionate care for people facing a life-limiting illness or injury. Hospice and palliative care involve a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the person’s needs and wishes. Support is provided to the person's loved ones as well.

“A common misconception people have is that hospice means you’re ‘giving up’ or ‘that there’s nothing left for the doctor to do,’ and that’s absolutely wrong. Hospice is not about giving up but is about maximizing the quality of life, no matter how long that might be,” Schumacher said.

When cure is no longer possible, hospice provides the type of care most people say they want at the end of life – comfort and quality of life. The most common statement made by families who chose hospice for their loved one is, “we wish we had known about hospice sooner.”

• Hospice focuses on caring, not curing and, in most cases, care is provided in the person’s home.
• Hospice care also is provided in freestanding hospice centers, hospitals, and nursing homes and other long-term care facilities.
• Hospice services are available to patients of any age, religion, race, or illness.
• Hospice provides bereavement support to families for 12 months following the death of their loved one.
• Hospice care is covered under Medicare, Medicaid, most private insurance plans, HMOs, and other managed care organizations
• Research has shown the Medicare beneficiaries that opted for hospice care as opposed to other medical interventions when faced with a terminal illness lived on average 29 days longer than those who did not receive hospice care.

Foundational values of NHPCO include universal access to high quality hospice and palliative care, fully informed decision-making, mitigation of unwanted suffering, non-abandonment and support for the bereaved. NHPCO would encourage all those struggling with serious and life-limiting illness to fully explore hospice and palliative care services before they find themselves in a crisis situation involving options for care of a dying loved one. To learn more about hospice and palliative care, dealing with pain, and advance care planning, visit NHPCO’s Caring Connections at http://www.caringinfo.org/oror call 1-800-658-8898.

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Note: NHPCO’s position statement and narrative on physician assisted suicide is available via the Communications section of NHPCO’s Web site.

Media Contact: Jon Radulovic

NHPCO, Vice President of Communications

703-837-3139

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org