Showing posts with label memorial. Show all posts
Showing posts with label memorial. Show all posts

Thursday, June 9, 2011

A Member of NHPCO’s Leadership Team Shares Thoughts on Death(ly) Panels

I spent Memorial Day Weekend with a group of Cub Scouts ranging in age from six to 11. My son, who is eleven, was excited to be “crossing the bridge” from Cub Scouts to Boy Scouts. The formal ritual, which involved his Den leader saying some nice words about his growth and older Boy Scouts welcoming him to their midst, was an important milestone in my son’s life. He isn’t a little kid any more, he’s a teenager. I have no idea when that happened.



Nor do I know the specific moment when I became the adult caregiver of my mother, who turns 80 this year and has been in good physical and mental shape for years. Yet it hasn’t been easy. The death of her two sisters within six months of one another and two knee replacements surgeries of her own during those difficult months left her exhausted as well as emotionally and physically frail. I flew to Florida to visit her in the facility where she is receiving rehab, arranged for non-medical aides to help her when she moved back home and spent a few days with her so she wouldn’t be alone. This was an important milestone for me as an adult daughter. My responsibility level has increased and there really isn’t any going back.



As adults we experience multiple milestones – planned and unplanned – that mark our progression through life. One day we are happily single and the next we’re in a committed relationship. We’re childless and then become parents in a few short months. We are healthy and the next day we’re told we have a potentially life-limiting illness. It all happens so fast and there’s little we can do to slow down this inevitable march onward, through life’s stages.



We can’t stop it, even though many people try to slow down the aging process through surgery, exercise, nutrition or just plain denial. We can save money for our kids’ education. We can put money away for retirement. But eventually we’re all going to face the fact that we’re all mortal. Even as aware as we all are that we will die some day, we do little to plan for it.



When there is a healthcare crisis, which happens to so many people, we are unprepared, as are our families. We haven’t thought about the type of care we want or don’t want. We haven’t selected someone to speak for us if we can’t talk to the doctors ourselves. We haven’t told anyone whether we would or would not want to be kept alive through medical interventions if the chance of recovery was slim. We haven’t planned properly to make sure we are in control during what might be the last phase of our life.



My son is now memorizing all the Boy Scout pledges, laws and mottos in preparation for his first meeting. To me the most important one, besides “do a good turn every day,” is the one that is best known and yet universally most ignored – “be prepared.”



You can’t avoid the last milestone in life. Hopefully you won’t face it for many years to come. But it will happen, in some shape or form, to all of us. Take a lesson from my son, be prepared. Download a free advance directive, read it through and talk about with your doctor and family members, sign it and give copies to folks who will need it during a crisis. Take control of the phase of your life before that milestone creeps up on you and catches you unprepared.

GUEST BLOGGER: Kathy Brandt, MS, the Senior Vice President, Office of Education and Engagement at the National Hospice and Palliative Care Organization, is a passionate believer in the need to plan for, talk about, and document end-of-life care wishes, and the proud mother of an amazing eleven year Boy Scout.

Tuesday, May 24, 2011

Five Tips to Support Those Who’ve Lost a Loved One in Service to our Country

There is greater significance to Memorial Day (May 30) than the start of the summer season. Memorial Day is a time to publicly show our respect for those who have lost their lives in defense of our country and to offer support to grieving loved ones.

As we mark Memorial Day this year, we are a country involved in conflicts abroad. The ongoing fighting in Iraq and Afghanistan continues to take a toll on our nation. Serious injuries and the untimely deaths of our brave service men and women remind us that life is precious.

Hospice and palliative care professionals – who help families cope with loss on a daily basis – share ideas on how to honor this sacrifice on Memorial Day and every day:

1. Acknowledge the day with a phone call or card to the family; tell a story you remember about the service member who has died and/or ask the family to share a story. Keeping their loved one’s memory alive is an important part of healthy grief and coping.

2. Offer to accompany or take the grieving person to the cemetery or other place of remembrance; people are sometimes reluctant to take advantage of such opportunities alone and will appreciate your thoughtfulness.

3. Make a donation in memory of the person who has died to a charity that was important to the service member or the family; this can be a powerful reminder to them that you remember and that you care.

4. Listen. Sometimes the greatest gift we can give is to listen to what others think and feel. Supporting those who are grieving can be as simple as lending an ear or holding a hand.

5. Acknowledge your own feelings; share the range of thoughts and emotions you experience with someone you trust, but not necessarily with the grieving family. Whether it is pride or shame, grief or hope, sharing these feelings is important.

Memorial Day can be a time to reach out to each other and share in our communal experience of grief and loss.

Your community hospice can be a source of information on grief and bereavement.Caring Connections, a program of the National Hospice and Palliative Care Organization, also offers information on grief at caringinfo.org or by calling the HelpLine at 1-800-658-8898.

-###-

Hospice and palliative care providers interested in learning how to address the unique needs of Veterans at the end of life, should learn more about We Honor Veterans, an pioneering program of NHPCO, in collaboration with the Department of Veterans Affairs (VA),that focuses on respectful inquiry, compassionate listening and grateful acknowledgment.


We Honor Veterans logo

Monday, March 30, 2009

NHPCO President/CEO and Board Chair Visit to UK

NHPCO President/CEO and Board Chair Visit to UK Includes a Meeting with HRM Queen Elizabeth II at Help the Hospices Silver Jubilee

Alexandria, Va) – J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization, and Gretchen Brown, chair of the NHPCO board of directors traveled to London on March 15 for a series of meetings with international hospice and palliative care organizations and providers. A highlight of the trip was the opportunity to meet Her Majesty The Queen and His Royal Highness The Duke of Edinburgh at a reception marking the 25th anniversary of Help the Hospices, the leading British charity supporting hospice care throughout the United Kingdom.

The celebration at St. James’s Palace in London on March 16 brought together 600 guests that included hospice founders, staff, and volunteers from hospice programs throughout the UK as well as hospice professionals from across the globe.

“We had the honor of being introduced to Queen Elizabeth and we spoke about the vital role that Dame Cicely Saunders played with her pioneering work at St. Christopher’s Hospice in London. The Queen asked about the breadth of hospice in the US and remarked on the challenges that national organizations, such as NHPCO, must face,” said Dr. Schumacher. “She was gracious, kind and obviously well informed about today’s hospice environment.”

In a press statement, David Praill, chief executive of Help the Hospices, said: “We are absolutely delighted to be celebrating this anniversary and the huge strides hospice care has made, while recognizing many challenges still lie ahead. This gives us a wonderful opportunity to say thank you to those who have helped and supported both our charity since our founding and also the development of hospice care in the UK and across the world.”

While abroad, Schumacher and Brown met with David Praill of Help the Hospices and discussed differences in structure between end-of-life care delivery in the US and the UK. A meeting with the leadership of the Worldwide Palliative Care Alliance on global palliative care issues also provided an opportunity to discuss the work being done by hospice and palliative care providers in the US.

In his role as president and CEO of the National Hospice Foundation, Schumacher was pleased to present the final report on the work and accomplishments of NHF's Diana Legacy Fund to staff at the Diana, Princess of Wales Memorial Fund. In 2005, a generous grant for $3.35 million was awarded by the Diana, Princess of Wales Memorial Fund in cooperation with the Franklin Mint and supported work of NHF, NHPCO, and the Foundation for Hospices in Sub-Saharan Africa.

“This visit was a strong reminder of how important the voice of US hospice and palliative care is on the international stage. More importantly, it reminds us that we are partners in the global community with much to learn, much to share, and much to celebrate,” Schumacher noted.

All the events surrounding Help the Hospice’s silver jubilee provided a valuable opportunity to focus on both achievements and opportunities for hospice and palliative care. At the dinner following the reception at St. James’s Palace, Dr. Schumacher was seated with Anne, Duchess of Norfolk, Help the Hospices founder and president. Other notable guests included: Professor Mike Richards, national clinical director for cancer, Department of Health; Baroness Illora Findlay, professor of palliative medicine, member of the House of Lords and president of the Royal Society of Medicine; Graham Perrolls, executive director of Hospices of Hope and internationally recognized advocate for hospice in Romania; and Elizabeth Gwyther of the Hospice and Palliative Care Association of South Africa. All the events surrounding Help the Hospice’s silver jubilee provided a valuable opportunity to focus on both achievements and opportunities for hospice and palliative care.

For more information visit, http://www.nhpco.org