Friday, February 27, 2015

Advance planning in pediatric hospice/palliative care

A new edition of the E-journal from NHPCO's Children's Project on Palliative/Hospice Services that examines selected issues in advance planning in pediatric hospice/palliative care is now available for download, free of charge.

These articles argue for the value of advance planning, describe tools for that purpose, explain how to initiate advance planning conversations, and indicate who should be involved in this care. Because this is a very important subject, the ChiPPS E-Journal Workgroup has decided to devote two issues to these discussions - this is the first of the two issues.

Workgroup editors commented, "We appreciate that no two issues or collections of articles will do justice to these broad topics, but we hope that the articles in this issue and in the one to follow will spur discussion and implementation of advance planning as a cooperative enterprise with children, adolescents, their family members, and the professionals involved in their care."

Visit the ChiPPS archive page online for past editions of the ChiPPS E-Journal and E-Newsletter

Thursday, February 12, 2015

NHPCO Forms Council to Address Lack of Utilization of Hospice Care in Diverse Communities

As Americans celebrate Black History Month, hospice professionals acknowledge that hospice utilization within African American communities is disproportionately low.  To help address this disparity in end-of-life care, the National Hospice and Palliative Care Organization has created a Diversity Advisory Council – a group of hospice and healthcare professionals and experts who will work to increase access to hospice and palliative care services. 

Researchers have tackled this disparity, to identify why such underutilization of hospice exists.  Studies have concluded that many African Americans are distrustful of the government and the healthcare system, a distrust that is rooted in both historical and present day experiences, and may play a role in the decisions families make when facing the challenges of a life-limiting illness.

“Of all patients utilizing hospice in 2013, approximately 8.4% were identified as black or African American,” says NHPCO Senior Vice President of Education, Access, and Philanthropy, Diane Hill Taylor.  “With guidance from the Diversity Advisory Council, we will build a strong initiative to ensure that we’re reaching all those who need hospice care.”

To support the work of hospice providers, a newly-revised version of NHPCO’s African American Outreach Guide is now available online, free of charge. The Guide outlines key principles and insights to help hospices better serve this diverse community. 

The council will assist with the development of additional resources and tools related to serving diverse populations.  The group will offer recommendations and educational content to NHPCO members who are seeking to connect with diverse populations in the communities they serve.  (Read NHPCO's full press release online.)