Showing posts with label families. Show all posts
Showing posts with label families. Show all posts

Monday, December 13, 2010

When is it Time for Hospice?

Hospice brings compassion, dignity and hope to people nearing life’s end

(Alexandria, Va) – There is a point when cure is no longer possible for someone with a life-limiting illness, but that does not mean a patient and family must abandon all hope. Through hospice care, there is still hope for a peaceful death; hope to spend final months, weeks or days free of pain; and hope for quality time with loved ones in the familiar surroundings of home.

“While there isn’t one specific point in an illness when a person should ask about hospice care, many hospice professionals would suggest that a person think about hospice long before he or she is in a medical crisis,” advises J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization. “In fact, learning about palliative care and hospice as options is something that should happen early in the course of a serious illness and not just in the final days.”

Hospices utilize a team of professionals and trained volunteers to provide expert medical care, pain-and-symptom management, and emotional and spiritual support to patients and family caregivers. All care is tailored to the patient’s needs and wishes.

Hospice helps patients and families focus on living as fully as possible.

“Hospice professionals can be important resources for patients and families, they can help a person figure out what goals are important and help them get their arms around the fact that their life may be coming to a close,” noted Schumacher.

Considered to be the model for high-quality, compassionate care for people nearing the end of life, hospice offers the services and support that Americans want when coping with life-limiting illness.

Last year, hospice cared for more than 1.56 million patients in the US. NHPCO estimates that 41.6 percent of all deaths in the US were under the care of a hospice program last year.

Facts about hospice:

  • Most hospice care is provided in the home. Care is also provided in nursing homes, assisted living facilities, and hospice centers
  • Hospice care is fully covered by Medicare, private insurance, and by Medicaid in most states.
  • Hospice care is not just for people with cancer. Hospices serve those with advanced Alzheimer’s disease, heart disease, lung disease, HIV/AIDS – anyone who is facing a life-limiting illness.
  • The hospice benefit pays for medications and medical equipment related to the illness.
  • Hospice care is available as long as a doctor believes the patient is eligible.
  • Hospice care can include complementary therapies, such as music and art, to bring additional comfort.
  • Hospice’s offer grief support to the family following the death of a loved one.
“Ideally, a patient would receive hospice care for the final months of life – not just the final days,” stated Schumacher. “One of the most common sentiments from families who have been helped by hospice care is that they wish they had known about hospice sooner.”

A recent report from the Dartmouth Atlas Project looking at care for patients with advanced cancer at the end of life identified gaps between patient wishes and care received. This highlights the need for people to learn about all options available for care.

Additional research published in the Journal of Pain and Symptom Management found that Medicare beneficiaries who received hospice care lived on average 29 days longer than those who did not opt for hospice near the end of life.

For more information, contact your local hospice, visit NHPCO’s Caring Connections website at caringinfo.org, or call the HelpLine at 1-800-658-8898.

Tuesday, June 29, 2010

Attention on Medical Overtreatment Raises Awareness on Advance Care Planning, Hospice and Palliative Care

NHPCO's Caring Connections Encourages People to Learn More

(Alexandria, Va) – Recent media coverage (Associated Press 06/29/10) on the challenges patients and families face with overtreatment of a life-limiting illness brings the issues of hospice and palliative care and advance care planning to public attention.

“It’s important to remember that quality of life and a patient’s personal wishes, beliefs and values must be a factor when making care decisions brought about by a serious or terminal illness,” said J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization.

“Discussions helping patients and families understand the many benefits of hospice and palliative care must be more common and held long before a family faces a medical crisis,” Schumacher added.

Advance Care Planning

Advance care planning—which includes completing a living will and appointing a healthcare proxy—is somewhat like planning a road trip to an unfamiliar destination. Very few people would expect to get to a destination safely and comfortably without having a well-thought-out map in hand. Yet, it’s estimated that 70 percent of Americans have not completed a living will.

  • A living will charts the course for your healthcare, letting your family and health care providers know what procedures and treatments you would want provided to you—and under what conditions.
  • A healthcare proxy or healthcare power of attorney form, allows you to choose someone you trust to take charge of your healthcare decisions in case you are unable to make those decisions yourself.
  • Advance directives can be changed as an individual’s situation or wishes change.
Hospice and Palliative Care

Many people mistakenly think that hospice is simply a place you go when nothing more can be done to address an illness. That misunderstanding can keep people from accessing the expert care that hospice and palliative care offers.

NHPCO reports that more than a third of hospice patients received care for seven days or less—not enough time to take full advantage of the range of available services.

Hospice and palliative care provide symptom management, pain control, and support to address emotional, psychological, and spiritual needs.

“Hospice brings patients and families compassionate care when a cure isn’t possible. Palliative care provides comfort and support earlier in the course of a serious illness and is not dependent upon prognosis,” explained Schumacher. “Together, hospice and palliative care provide solutions beyond traditional medical care. Most importantly, hospice and palliative care provide dignity at a time when it’s needed most.”

Important Facts
  • Over 80 percent of hospice care takes place in the home.
  • Over 1,300 hospitals have palliative care programs; many of the nation’s 4,800 hospice providers offer palliative care services as well.
  • Hospice care is covered under Medicare, Medicaid, and most private insurance plans.
  • Bereavement services are available to family for a year following the death of a loved one.
  • Research has shown that hospice patients lived an average of 29 days longer than similar patients who did not opt for hospice care.
Learn more about advanced care planning, hospice care, and palliative care from NHPCO's Caring Connections at www.CaringInfo.org or call the HelpLine at 1-800-658-8898.

###

Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Friday, October 30, 2009

National Hospice/Palliative Care Month



November is National Hospice/Palliative Care Month. This year’s theme, Preserving a legacy…treasuring memories, reminds us that every person we care for is a unique individual with a lifetime of experiences, relationships and gifts to share. Hospice and palliative care community honor patients and families and support them during the journey at life’s end.

Materials & Resources for NHPCO Members
A variety of outreach materials have been created for NHPCO members and coalitions to use during Hospice/Palliative Care Month and all year long. Visit www.nhpco.org/outreach access all available resources.

NHPCO and Caring Connections offer the following informational articles that may be used to help inform audiences about the importance of quality end-of-life care.

Collection of Articles
NHPCO offers the following articles to those who may wish to learn more or to use them in hospice outreach and educational efforts.



Hospice Facts and Figures
NHPCO’s research team has just released updated Facts & Figures about hospice care in the U.S.

NHPCO’s Marketplace
The Marketplace offers a range of products inspired by the National Hospice/Palliative Care Month quilt. Download the Marketplace hospice/palliative care merchandise flyer (PDF) or contact Marketplace at 1-800-646-6460.

Additional Information for the Public
NHPCO’s Caring Connections offers a wide range of helpful information about hospice, palliative care, advance care planning, dealing with pain, family caregiving, grief and more. Brochures and fact sheets are available at no charge. Additional materials for organizations and community coalitions working to educate the public and their communities about end of life care is also available free of charge. Visit http://www.caringinfo.org/ or call the HelpLine at 1-800-658-8898.

Support the Work of NHPCO
The National Hospice Foundation is NHPCO’s affiliate organization that accepts and administers charitable contributions on behalf of the NHPCO and FHSSA. NHF envisions a world where everyone facing serious illness, death, and grief will experience the best that humankind can offer. By making a contribution today to the NHF General Fund, you can help us create that world.

Media Contact for additional information on hospice and palliative care or NHPCO:
Jon Radulovic
Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org