Showing posts with label patients. Show all posts
Showing posts with label patients. Show all posts

Thursday, June 30, 2011

NHPCO Draws Providers’ Attention to Article in New York Times

NHPCO members may have seen the article from Kaiser Health News that was posted on the New York Times website yesterday and appears in print in the Health & Science section today, "Concerns about costs rise with hospices' use."

NHPCO wanted to let members know that President/CEO Don Schumacher wrote a letter to the editor reminding the NY Times that growth in hospice over the past decade reflects our caring more compassionately for the dying in this country. He also made the point that NHPCO has been calling for more federal oversight of hospice for many years.

The NY Times blog page, New Old Age, welcomes comments from readers. Please feel free to share any thoughts you might have through the comment section of the New Old Age blog. An insightful comment was posted on the New Old Age blog that NHPCO would like to draw provider's attention to. An individual wrote: "I'm so thankful that this article was published, because we weren't aware that hospice care was available for end stage Alzheimers. We want to do everything we can to honor my mother's wish that she die in her own home, but if things become impossible,,,well it gives me great comfort to know there is another option."

To many of us, so close to issues that involve the field, it can be easy to forget that many members of the public are concerned about issues as they affect them in a personal way. Even challenging news articles can provide valuable information about hospice that is important to the public.

In addition to Don's letter to the editor, we are submitting an op-ed to the NY Times that we hope will get serious consideration.

Additionally, the Public Policy team has put together some specific talking points they are sharing with legislators and their staffs on Capitol Hill who may have concern or confusion resulting from this article.

We wanted to assure members that NHPCO has been actively responding following the release of this article.
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Monday, December 13, 2010

When is it Time for Hospice?

Hospice brings compassion, dignity and hope to people nearing life’s end

(Alexandria, Va) – There is a point when cure is no longer possible for someone with a life-limiting illness, but that does not mean a patient and family must abandon all hope. Through hospice care, there is still hope for a peaceful death; hope to spend final months, weeks or days free of pain; and hope for quality time with loved ones in the familiar surroundings of home.

“While there isn’t one specific point in an illness when a person should ask about hospice care, many hospice professionals would suggest that a person think about hospice long before he or she is in a medical crisis,” advises J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization. “In fact, learning about palliative care and hospice as options is something that should happen early in the course of a serious illness and not just in the final days.”

Hospices utilize a team of professionals and trained volunteers to provide expert medical care, pain-and-symptom management, and emotional and spiritual support to patients and family caregivers. All care is tailored to the patient’s needs and wishes.

Hospice helps patients and families focus on living as fully as possible.

“Hospice professionals can be important resources for patients and families, they can help a person figure out what goals are important and help them get their arms around the fact that their life may be coming to a close,” noted Schumacher.

Considered to be the model for high-quality, compassionate care for people nearing the end of life, hospice offers the services and support that Americans want when coping with life-limiting illness.

Last year, hospice cared for more than 1.56 million patients in the US. NHPCO estimates that 41.6 percent of all deaths in the US were under the care of a hospice program last year.

Facts about hospice:

  • Most hospice care is provided in the home. Care is also provided in nursing homes, assisted living facilities, and hospice centers
  • Hospice care is fully covered by Medicare, private insurance, and by Medicaid in most states.
  • Hospice care is not just for people with cancer. Hospices serve those with advanced Alzheimer’s disease, heart disease, lung disease, HIV/AIDS – anyone who is facing a life-limiting illness.
  • The hospice benefit pays for medications and medical equipment related to the illness.
  • Hospice care is available as long as a doctor believes the patient is eligible.
  • Hospice care can include complementary therapies, such as music and art, to bring additional comfort.
  • Hospice’s offer grief support to the family following the death of a loved one.
“Ideally, a patient would receive hospice care for the final months of life – not just the final days,” stated Schumacher. “One of the most common sentiments from families who have been helped by hospice care is that they wish they had known about hospice sooner.”

A recent report from the Dartmouth Atlas Project looking at care for patients with advanced cancer at the end of life identified gaps between patient wishes and care received. This highlights the need for people to learn about all options available for care.

Additional research published in the Journal of Pain and Symptom Management found that Medicare beneficiaries who received hospice care lived on average 29 days longer than those who did not opt for hospice near the end of life.

For more information, contact your local hospice, visit NHPCO’s Caring Connections website at caringinfo.org, or call the HelpLine at 1-800-658-8898.

Tuesday, November 23, 2010

Don't Wait to Talk About Hospice

With Release of PBS FrontlineSeries and Dartmouth Atlas Report, NHPCO Reminds People of the Importance of Advance Care Planning

(Alexandria, Va) – An intimate journey into the edge of life is how this evening’s episode of the PBS series Frontline has been described. Frontline’s "Facing Death" will air this evening (11/23/10) at 9:00pm on most PBS stations.

In this groundbreaking film, doctors, patients and families at one of New York’s biggest hospitals speak with remarkable candor about the increasingly difficult choices people are making at the end of life: when to remove a breathing tube in the ICU; when to continue treatment for patients with aggressive blood cancers; when to perform a surgery; and when to call for hospice.

This follows the release of a report from the Dartmouth Atlas Project looking at care for patients with advanced cancer at the end of life that identified gaps between patient wishes and care received.

The National Hospice and Palliative Care Organization urges members of the public to learn about advance care planning and discuss wishes with family members.

“It’s an all too common situation. A family is at the bedside of a loved one who is seriously ill and nearing the end of life,” remarked J. Donald Schumacher, NHPCO president and CEO. “Each member of the family has a different idea of what should be done and what the patient would have wanted.”

Far too many people wait until they are in the midst of a health care crisis before thinking about what options are available or what care they or their loved ones would have wanted. Hospice professionals deal with these challenging situations every day – that’s what they are trained to do.

When a family is coping with a serious illness and a cure is no longer possible, hospice provides the type of care most people say they want at the end of life: comfort and dignity. Considered to be the model for high-quality, compassionate care for people with a life-limiting illness, hospice care includes expert medical care, pain management, and emotional and spiritual support. Care is provided by an inter-disciplinary team of professionals and trained volunteers. The wishes of the patient and family are always at the center of care.

Most hospice care is provided in the home – where the majority of Americans have said they would want to be at this time. Care is also provided in nursing homes, assisted living facilities, and hospice centers.

Care is paid for by Medicare, Medicaid, and most private insurance plans and HMOs.

The National Hospice and Palliative Care Organization reports that more than 1.56 million people received care from our nation’s hospices last year.

Hospice providers can help with information about care options and choices and ensure you live as fully as possible throughout your entire life. They will make sure your loved ones receive support as well.

One of the best ways to make sure you and your loved ones benefit fully from hospice, should you ever need this care, is to talk about it before it becomes an issue.

For more information on advance care planning and hospice, visit NHPCO’s Caring Connections at caringinfo.org or call the HelpLine at 1-800-658-8898.

Caring Connections is one of the recommended resources included with the education tools PBS has made available online for “Facing Death.”

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Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Tuesday, November 16, 2010

Dartmouth Atlas Report Identifies Gap between Patient Wishes and Care Received

NHPCO Commends Dartmouth Atlas Project and Calls on Hospitals to Increase Access to Hospice Care

(Alexandria, Va) – A new report released today from the Dartmouth Atlas Project showing that individuals in some areas of the country are far less likely to receive comfort care in accordance with their wishes and has drawn the attention of the nation’s hospice and palliative care community.

This first-ever report from the Dartmouth Atlas Project on cancer care at the end of life, found that across the US, about 29 percent of patients with advanced cancer died in a hospital between 2003 and 2007. And in 50 academic medical centers, fewer than half of these patients received hospice care.

Furthermore, the study authors state that many patients are aggressively treated with curative therapies they may not want, and, “for frail elderly patients, and any patient with advanced cancer, these treatments have limited or no benefit.”

“The Dartmouth Atlas Project is to be commended for undertaking this thorough examination of end-of-life care for Medicare beneficiaries with advance cancer,” said J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization. “While the findings of variation in care are not necessarily a surprise, one of the key messages that I take away from this report is the critical need for hospitals and all healthcare professionals to ensure that all patients are informed earlier about the course of an illness and the range of options available – options that include hospice and palliative care.”

The likelihood that a Medicare patient with advanced cancer will die with the support of hospice care, or in the hospital without hospice, varies markedly depending on where he or she lives and receives care. The percent of cancer patients dying in a hospital varied threefold among patients receiving most of their care at academic medical centers.

“It’s important to recognize that this report is not a negative comment on care in our nation’s hospitals or among academic medical centers, rather, it’s a much needed reminder that healthcare professionals must work to help patients and families understand where the course of their illness may take them. And, when cure is not possible, it is our duty to offer the robust benefits that the hospice team can provide,” added Schumacher.

Hospice care provides coordinated care delivered by a team of interdisciplinary professionals that are trained to address the special needs a person has at the end of life. The hospice team provides pain and symptom relief as well as emotional and spiritual support for the patient and the family.

More than 1.56 million Americans received care from the nation’s hospices last year. However, 34 percent of patients died or were discharged in seven days or less – too short a time to take full advantage of all of the services available under hospice, including support for family caregivers.

“In more than 30 years of running hospice programs, the most frequent comment I would hear from patients and families was why they didn’t learn about hospice care earlier,” Schumacher noted.

For several years, NHPCO’s Caring Connections has been providing healthcare professionals and consumers with information about care options and caregiving when facing serious or life-limiting illness. Information to help patients and family caregivers understand the benefits of hospice care, speak with physicians about care, or learn about advance care planning is available free of charge from NHPCO’s Caring Connections at www.CaringInfo.org or by calling the HelpLine at 1-800-658-8898.


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The Dartmouth Atlas Project is run by the Dartmouth Institute for Health Policy and Clinical Practice and principally funded by the Robert Wood Johnson Foundation. A link to the full study can be found at www.dartmouthatlas.org.

NHPCO is the oldest and largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. NHPCO’s mission is to lead and mobilize social change for improved care at the end of life, www.nhpco.org.


Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

November 2010 Palliative Care Grand Rounds

The 2010 November Palliative Care Grand Rounds (PCGR), highlighting blog post focusing on hospice, palliative care and grief matters, is being hosted this month by Compassion & Choices Blog. Check it out today!

The views expressed in the Palliative Care Grand Rounds are the sole responsibility of the authors of each blog highlighted and does not necessarily reflect the views of NHPCO, this blog or its editors.

Thursday, September 30, 2010

Schumacher Quoted in Oncology Times

NHPCO's Don Schumacher is quoted in an article in Oncology Times, "Helping Prevent Suicide in Cancer Patients," (September 25, 2010 issue). The article by Robert Carlson begins:

"Oncologists who say they've never had a patient commit suicide simply might not know. The patient who doesn't return for treatment or reportedly died of an accidental drug overdose could have decided, in their suffering, that life was not worth living."

Dr. Schumacher offers some insight from his 30 years of running a hospice program. This is an informative article for oncologists and other healthcare providers.

Read the article online! What are you thoughts?

Thursday, August 19, 2010

Research Shows Patients May Live Longer with Hospice and Palliative Care

NHPCO Reminds People They Can Ask Physicians for Palliative Care

(Alexandria, Va) – A new study released by the New England Journal of Medicine found that among patients with non-small-cell lung cancer, those who received palliative care lived, on average, almost two months longer than those who received standard care. Researchers also found that the patients receiving palliative care reported a higher quality of life through the final course of their illness.

The goals of palliative care are to improve the quality of a seriously ill person’s life and to support that person and their family during and after treatment. Sharing the same philosophy of hospice care which is usually provided in the final months of life, palliative care may be provided at any stage during a serious or life-limiting illness.

Researchers also found that when patients received palliative care services, they were also more likely to elect hospice services.

"With earlier referral to a hospice program, patients may receive care that results in better management of symptoms, leading to stabilization of their condition and prolonged survival," wrote the authors of the study released Wednesday in the New England Journal of Medicine.

This new study adds to the body of evidence showing that many patients live longer with hospice and palliative care.

A 2007 study that looked at Medicare beneficiaries with some of the most common diagnoses leading to death, found that patients who received hospice services lived on average, 29 days longer than those who did not receive hospice care. This study, published in the Journal of Pain and Symptom Management (March 2007) looked at 4,493 terminally ill patients with either congestive heart failure or cancer of the breast, colon, lung, pancreas, or prostate.

In an earlier study looking at patients with 16 of the most common terminal diagnoses, researchers found that hospice patients lived longer. On average, this ranged from 20 days for those with a diagnosis of gallbladder cancer to 69 days for the cohort of breast cancer patients (JPSM, September 2004).

“There’s an inaccurate perception among the American public that hospice means you’ve given up,” said J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization. “Those of us who have worked in the field have seen firsthand how hospice and palliative care can improve the quality of and indeed prolong the lives of people receiving care.”

NHPCO encourages all families who are diagnosed with a serious illness to ask their healthcare providers about hospice and palliative care services.

“The time to learn about these services is before a person is in a medical crisis. Patients and families must learn about these options of care as soon as possible,” Schumacher added.

Both hospice and palliative care focus on helping a person with a serious or life-limiting illness by addressing issues causing physical or emotional pain, or suffering. Hospice and other palliative care providers have teams of people working together to provide care.

More information about hospice and palliative care is available online at caringinfo.org or by calling the HelpLine at 800-658-8898.

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Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Thursday, July 29, 2010

Promising Steps

I am heading to our conference on “Developing the Care Continuum” next week and I’m looking forward to what I know will be some thoughtful, forward-thinking discussions. Devoting an entire event to exploring the various ways we can become more visible, more available, and more valuable to the people in our communities is, in itself, a forward-thinking strategy—and also very timely.

Greater attention will be placed on improving care coordination and eliminating duplicative services as the health reform law is implemented over the next several years. All hospices, not just a select few, need to begin thinking, planning, and taking steps toward greater collaboration or the diversification of their services if they want to grow their census. Palliative care is certainly one option that is already on the rise in hospitals. However, other services are also helping hospices to establish relationships with patients and other providers earlier in the life cycle. In the coming weeks, NHPCO will make available both webcasts and session tapes from the conference to help members who were unable to attend.

Be mindful, too, of the positive steps that are also being taken here in Washington (yes, Washington!):

  • From our conversations with Senator Ron Wyden, we know the Concurrent Care Demonstration Project is now taking shape. This three-year project, which will be conducted by CMS, will monitor patients at 15 different hospice programs who will be permitted to receive other Medicare-covered services as well as hospice care. The goal is to evaluate the impact of concurrent care on the patient and family’s quality of life as well as the cost of care. It has the potential to strengthen the bridge between hospice and palliative care—and may be another good reason to consider a partnership or expansion into palliative care.
  • Undaunted by the ‘death panel’ debacle of last summer, Representative Earl Blumenauer has also re-introduced legislation calling for Medicare and Medicaid to cover voluntary consultations about end-of-life care planning between patients and their physicians. NHPCO worked with the Congressman to help advance this valuable legislation, including a formal letter of support.

I know that running a hospice program today is not easy, given the regulatory and economic challenges of our times. As one colleague admitted, “it’s easy to get stuck in the weeds.” But it is far too critical a time to let that happen. This new decade holds much promise—if we are all poised and ready to be part of it.

Don

Tuesday, June 29, 2010

Attention on Medical Overtreatment Raises Awareness on Advance Care Planning, Hospice and Palliative Care

NHPCO's Caring Connections Encourages People to Learn More

(Alexandria, Va) – Recent media coverage (Associated Press 06/29/10) on the challenges patients and families face with overtreatment of a life-limiting illness brings the issues of hospice and palliative care and advance care planning to public attention.

“It’s important to remember that quality of life and a patient’s personal wishes, beliefs and values must be a factor when making care decisions brought about by a serious or terminal illness,” said J. Donald Schumacher, president and CEO of the National Hospice and Palliative Care Organization.

“Discussions helping patients and families understand the many benefits of hospice and palliative care must be more common and held long before a family faces a medical crisis,” Schumacher added.

Advance Care Planning

Advance care planning—which includes completing a living will and appointing a healthcare proxy—is somewhat like planning a road trip to an unfamiliar destination. Very few people would expect to get to a destination safely and comfortably without having a well-thought-out map in hand. Yet, it’s estimated that 70 percent of Americans have not completed a living will.

  • A living will charts the course for your healthcare, letting your family and health care providers know what procedures and treatments you would want provided to you—and under what conditions.
  • A healthcare proxy or healthcare power of attorney form, allows you to choose someone you trust to take charge of your healthcare decisions in case you are unable to make those decisions yourself.
  • Advance directives can be changed as an individual’s situation or wishes change.
Hospice and Palliative Care

Many people mistakenly think that hospice is simply a place you go when nothing more can be done to address an illness. That misunderstanding can keep people from accessing the expert care that hospice and palliative care offers.

NHPCO reports that more than a third of hospice patients received care for seven days or less—not enough time to take full advantage of the range of available services.

Hospice and palliative care provide symptom management, pain control, and support to address emotional, psychological, and spiritual needs.

“Hospice brings patients and families compassionate care when a cure isn’t possible. Palliative care provides comfort and support earlier in the course of a serious illness and is not dependent upon prognosis,” explained Schumacher. “Together, hospice and palliative care provide solutions beyond traditional medical care. Most importantly, hospice and palliative care provide dignity at a time when it’s needed most.”

Important Facts
  • Over 80 percent of hospice care takes place in the home.
  • Over 1,300 hospitals have palliative care programs; many of the nation’s 4,800 hospice providers offer palliative care services as well.
  • Hospice care is covered under Medicare, Medicaid, and most private insurance plans.
  • Bereavement services are available to family for a year following the death of a loved one.
  • Research has shown that hospice patients lived an average of 29 days longer than similar patients who did not opt for hospice care.
Learn more about advanced care planning, hospice care, and palliative care from NHPCO's Caring Connections at www.CaringInfo.org or call the HelpLine at 1-800-658-8898.

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Contact:
Jon Radulovic
NHPCO, Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Monday, June 14, 2010

A Message from Don Schumacher, June 2010

Becoming a Larger Part of the Care Continuum

My opening plenary at the Management and Leadership Conference in April touched on many issues that, as an industry, we must be keenly aware of—and address together. In the limited space I have here, I’d like to talk about one of the issues of increasing import right now. That is, finding additional ways to serve more people in our communities.

I actually raised this issue when I became NHPCO’s president/CEO in 2002. As an industry, we were far too dependent on reimbursement from the very fragile Medicare system—and we still are today. While hospice payment reform will be the ultimate catalyst for change, my hope is that all providers will begin taking steps now to assess the needs in their community and explore ways to utilize their skills to meet their broader community’s needs. This is what I mean when I speak of becoming a larger part of the ‘care continuum.’ Much of my plenary address was devoted to this issue and I truly believe it is the very crux of our future success or demise as an industry.

The diversification or expansion of our services is, of course, not a quick or easy task to undertake. It requires planning and a thoughtful business strategy. But it is doable—there are programs which are now demonstrating just how doable it is.

Some hospices are now offering adult day care and home-diversion programs, others have become PACE providers, and still others are expanding into palliative care. In some cases, these providers are partnering with other organizations and in other cases they are going it alone. So I ask that you study the work now being done; explore various reimbursement models, including community-based waiver programs; and identify and begin dialog with potential partners in your community. Our cover story this month shares the process that Pathways Hospice followed to develop its community grief center in Fort Collins, Colorado—an excellent example of how one program assessed a community need and, building on a core strength, expanded its services. Our thanks to Nancy Jakobson, director of the center, for sharing her program’s experience with us.

In the coming months, NHPCO will be providing tools and resources to help you in this process. Our specialty conference in August, “Developing the Care Continuum: Innovative Models to Meet the Unique Care Needs of Patients/Families” will also serve as a dynamic forum to help jumpstart discussions among providers.

I encourage every provide-member to find additional ways to become a larger part of the care continuum. If we don’t step up, others will—leaving our industry a very marginalized component of the nation’s new healthcare system.

Don

Note: Don’s monthly message appears in NewsLine; members can access this month’s and previous issues at www.nhpco.org/newsline.

Thursday, June 3, 2010

June 2010 Palliative Care Grand Rounds

The June Palliative Care Grand Rounds, a "monthly blog carnival" highlighting blog post focusing on hospice, palliative care and grief matters, is being hosted this month by Julie Rosen at the Schwartz Center Blog. Check it out today!

The views expressed in the Palliative Care Grand Rounds are the sole responsibility of the authors of each blog highlighted and does not necessarily reflect the views of NHPCO, this blog or its editors.

Thursday, May 6, 2010

May 2010 Palliative Care Grand Rounds

The May edition of Palliative Care Grand Rounds for 2010, a "monthly blog carnival" highlighting blog post related to hospice and palliative care, is up at the Medical Futility blog ran by Thaddeus Pope. Check it out today!

The views expressed in the Palliative Care Grand Rounds are the sole responsibility of the authors of each blog hightlighted and does not necessarily reflect the views of NHPCO, this blog or its editors.

Tuesday, November 3, 2009

New Facts & Figures - Concern over short stays.

NHPCO Cites Concern Over Growing Short Length of Service in New Facts and Figures on Hospice Care in the U.S.

New Report on Hospice Care in America Released as November’s National Hospice/Palliative Care Month Begins

(Alexandria, Va) – More than 35 percent (35.4) of patients served by hospices in 2008 died or were discharged in seven days or less reports the National Hospice and Palliative Care Organization. This reflects a 4.6 percent increase from 2007, when 30.8 percent of patients had what is considered a short hospice experience.

Patients and families receiving care for seven days or less are often unable to take full advantage of the range of benefits that the hospice interdisciplinary team provides. These benefits include psychosocial support and spiritual care for patients and their families as well as pain management and symptom control,

While the average length of service increased from 67.4 days in 2007 to 69.5 days in 2008, the jump in patients receiving care for a short time is of concern to hospice providers and NHPCO.

Only 12.1 percent of those served died or were discharged with service of 180 days or more.

These statistics are featured in the report, “NHPCO Facts and Figures: Hospice Care in America,” which was released by NHPCO as the hospice and palliative care community begins to mark National Hospice/Palliative Care Month, an annual month of awareness and outreach celebrated every November.

NHPCO emphasizes the value of hospice care over the last months of a person’s life, not just the last days.

“More awareness of the care options available when facing a serious or life-limiting illness—among both the public and healthcare professionals—is still needed,” said J. Donald Schumacher, NHPCO president and CEO.

“The advance care planning provision that has been so hotly debated in health care reform discussions could be an important mechanism for helping dying Americans avoid hospice experiences that are too short to fully help them or their family caregivers.”

Learning about options before a patient and family are faced with a health crisis is strongly recommended by NHPCO. Hospices frequently provide information to community members interested in advance care planning.

Additional information about hospice, palliative care, and advance care planning is available from NHPCO’s Caring Connections at www.caringinfo.org or by calling the HelpLine at 800-658-8898.

“NHPCO Facts and Figures: Hospice Care in America,” is available in the News Room at www.nhpco.org.

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Contact:
Jon Radulovic
Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org.


For more information visit, http://www.nhpco.org

Friday, October 30, 2009

National Hospice/Palliative Care Month



November is National Hospice/Palliative Care Month. This year’s theme, Preserving a legacy…treasuring memories, reminds us that every person we care for is a unique individual with a lifetime of experiences, relationships and gifts to share. Hospice and palliative care community honor patients and families and support them during the journey at life’s end.

Materials & Resources for NHPCO Members
A variety of outreach materials have been created for NHPCO members and coalitions to use during Hospice/Palliative Care Month and all year long. Visit www.nhpco.org/outreach access all available resources.

NHPCO and Caring Connections offer the following informational articles that may be used to help inform audiences about the importance of quality end-of-life care.

Collection of Articles
NHPCO offers the following articles to those who may wish to learn more or to use them in hospice outreach and educational efforts.



Hospice Facts and Figures
NHPCO’s research team has just released updated Facts & Figures about hospice care in the U.S.

NHPCO’s Marketplace
The Marketplace offers a range of products inspired by the National Hospice/Palliative Care Month quilt. Download the Marketplace hospice/palliative care merchandise flyer (PDF) or contact Marketplace at 1-800-646-6460.

Additional Information for the Public
NHPCO’s Caring Connections offers a wide range of helpful information about hospice, palliative care, advance care planning, dealing with pain, family caregiving, grief and more. Brochures and fact sheets are available at no charge. Additional materials for organizations and community coalitions working to educate the public and their communities about end of life care is also available free of charge. Visit http://www.caringinfo.org/ or call the HelpLine at 1-800-658-8898.

Support the Work of NHPCO
The National Hospice Foundation is NHPCO’s affiliate organization that accepts and administers charitable contributions on behalf of the NHPCO and FHSSA. NHF envisions a world where everyone facing serious illness, death, and grief will experience the best that humankind can offer. By making a contribution today to the NHF General Fund, you can help us create that world.

Media Contact for additional information on hospice and palliative care or NHPCO:
Jon Radulovic
Vice President of Communications
Ph: 703-837-3139
jradulovic@nhpco.org

Tuesday, May 5, 2009

Worldwide Palliative Care

New International Alliance Launched to Address Urgent Needs of Palliative Care Patients Worldwide

(Alexandria, Va – NHPCO) – Today marks the launch of the Worldwide Palliative Care Alliance (WPCA), a new global action network designed to focus exclusively on hospice and palliative care development worldwide.

More than 100 million people and their families worldwide need palliative care and support each year, however, it is estimated that only seven per cent actually receive it. The need for palliative care is often greatest in low and middle income countries where more than 70 percent of all cancer deaths occur and where the HIV burden is the highest.

The WPCA is an alliance of national and regional hospice and palliative care organizations, bringing together people around the world with a shared vision of universal access to quality palliative care. This includes the National Hospice and Palliative Care Organization based in Alexandria, Virginia. With more than 34,000 members, NHPCO is the preeminent leadership organization in the U.S. representing hospice and palliative care providers and professionals.

“WPCA will provide a global voice to achieve the goal of universal access to quality palliative care,” said J. Donald Schumacher, NHPCO president and CEO, who is attending the launch of the WPCA at the 4th Worldwide Summit of National Associations of Hospice and Palliative Care in Vienna, Austria, today.

“Hospice and palliative care is still unavailable to many of those in need, especially in the developing world, with millions of people dying in pain and distress every year,” said Dr Cynthia Goh, co-chair of the WPCA, from the Asia Pacific Hospice Palliative Care Network. “Only 15 percent of the world’s countries have hospice and palliative care that is integrated with general healthcare so the formation of the WPCA is a tremendously positive step forward in helping to meet an overwhelming need.”

National hospice and palliative care organizations have been informally meeting every two years since 2003 to address this need—this group has now formally become the WPCA.

“The formation of the WPCA signifies the coming together of global palliative care leaders. Members of the WPCA will work together to support the development of hospice and palliative care services throughout the world so that all who need such care can access it. The WPCA also offers an opportunity to celebrate our diversity and share and learn from that richness to help provide palliative care for millions of people worldwide,” commented David Praill, co-chair of the WPCA, from the UK’s Help the Hospices.

For more information about WPCA, visit www.helpthehospices.org.uk/wpca

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WPCA Contact:
Bansree Takodra
Help the Hospices
Ph: 020 7520 8251

NHPCO Contact:
Jon Radulovic
NHPCO
703-837-3139
For more information visit, http://www.nhpco.org

Thursday, March 19, 2009

Costs of Care at EOL

Discussions About End-of-Life Care Reduce Healthcare Costs in Last Week of Life

NHPCO Encourages Dialog between Patients and Physicians

(Alexandria, Va) – Patients with advanced cancer who reported talking about their end-of-life wishes with their physicians had significantly lower healthcare costs in the last week of life. Researchers found that these conversations between patients and physicians led to fewer cases of aggressive care, which saved money and resulted in a far more peaceful death for patients.

The study in the March 9 issue of Archives of Internal Medicine suggests a tangible benefit to advance care planning discussions with physicians – lower costs and reduced utilization of aggressive care, including admission to the Intensive Care Unit.

Thirty percent of Medicare’s annual costs are spent on the five percent of beneficiaries who will die in a given year. Additionally, about one-third of those dollars spent in the last year of life are spent in the last month.

“Discussions about care at the end of life result in a higher quality of life for patients – and cost the healthcare system less money, that is something that hospice and palliative care providers have long known” said J. Donald Schumacher, president and CEO of National Hospice and Palliative Care Organization.

A 2007 study out of Duke University found hospice saves Medicare about $2,300 per beneficiary that receives hospice care.

Researchers in this recent survey looking at costs in the last week of life indicate that if 50 percent of people had a discussion with their physician about end-of-life care preferences, the cost difference in a year could be more than $76 million dollars.

Study participants who discussed end-of-life care preferences were more likely to be referred to hospice sooner than those who did not.

“In fact, patients who received less invasive or aggressive treatments lived as long as patients who did not, indicating that attempts to prolong life in end-stage cancer patients might be futile,” noted Schumacher.

Research published in the Journal of Pain and Symptom Management (March 2007) found that Medicare beneficiaries who opted for hospice care at the end of life lived on average 29 days longer than similar patients who did not take advantage of hospice.

NHPCO has been a longtime advocate for people having frank discussions about the care they would want – primarily to ensure that a person’s wishes are honored and that they experience the highest quality of life possible.

“An important time to talk to your doctor about the kind of care you would want at the end of your life is not when you’re days away from death but much earlier in the course of an illness,” said Schumacher.

“In fact, I cannot stress the importance of advance care planning for all people. Taking time, right now, to have these discussions with family and loved ones can be very important in making sure wishes are honored should a medical crisis come along,” added Schumacher.

Last year, more than 1.4 million Americans with life-limiting illness received the quality care from the nation’s 4,700 hospice care providers.

Information on care at the end of life, starting these important conversations with loved ones and care providers, and state specific advance directive forms, are all available free-of-charge on NHPCO’s Caring Connections Web site, www.caringinfo.org, or from the Helpline at 800-658-8898.

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For more information visit, http://www.nhpco.org

Tuesday, March 3, 2009

NHPCO Responds to Misleading Associated Press Quote

NHPCO Comments on Misleading Quote in Associated Press Article and Provides Helpful Information
Hospice is about Living Life as Fully as Possible

(Alexandria, Va) – The National Hospice and Palliative Care Organization wants all people to know that hospice delivers the highest quality care and services to patients and family caregivers who are coping with life-limiting illness. A recent article carried by the Associated Press (“Assisted Suicide Presents Legal Quandary,” by Greg Bluestein, 03/02/09) carries a misinformed quote from an attorney who incorrectly compared hospice to suicide. This remark was incorrect and demonstrates a lack of understanding about the hospice philosophy of care.
“Hospice compassionately cares for people who are near the close of life – but hospice isn’t about how you die, it’s about how you live. Hospice and palliative care focuses on how dying persons and their loved ones live each day, providing comfort and guidance along the way,” said J. Donald Schumacher, president and CEO of National Hospice and Palliative Care Organization. “The quote from that news article demonstrates a callous disregard for all those who receive care, including family caregivers, from our nation’s hospice programs.”
Hospice is widely recognized as the model for quality, compassionate care for people facing a life-limiting illness or injury. Hospice and palliative care involve a team-oriented approach to expert medical care, pain management, and emotional and spiritual support expressly tailored to the person’s needs and wishes. Support is provided to the person's loved ones as well.
“A common misconception people have is that hospice means you’re ‘giving up’ or ‘that there’s nothing left for the doctor to do,’ and that’s absolutely wrong. Hospice is not about giving up but is about maximizing the quality of life, no matter how long that might be,” Schumacher said.
When cure is no longer possible, hospice provides the type of care most people say they want at the end of life – comfort and quality of life. The most common statement made by families who chose hospice for their loved one is, “we wish we had known about hospice sooner.”
  • Hospice focuses on caring, not curing and, in most cases, care is provided in the person’s home.
  • Hospice care also is provided in freestanding hospice centers, hospitals, and nursing homes and other long-term care facilities.
  • Hospice services are available to patients of any age, religion, race, or illness.
  • Hospice provides bereavement support to families for 12 months following the death of their loved one.
  • Hospice care is covered under Medicare, Medicaid, most private insurance plans, HMOs, and other managed care organizations
  • Research has shown the Medicare beneficiaries that opted for hospice care as opposed to other medical interventions when faced with a terminal illness lived on average 29 days longer than those who did not receive hospice care.

Foundational values of NHPCO include universal access to high quality hospice and palliative care, fully informed decision-making, mitigation of unwanted suffering, non-abandonment and support for the bereaved. NHPCO would encourage all those struggling with serious and life-limiting illness to fully explore hospice and palliative care services before they find themselves in a crisis situation involving options for care of a dying loved one. To learn more about hospice and palliative care, dealing with pain, and advance care planning, visit NHPCO’s Caring Connections at http://www.caringinfo.org/oror call 1-800-658-8898.

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Note: NHPCO’s position statement and narrative on physician assisted suicide is available via the Communications section of NHPCO’s Web site.

Media Contact: Jon Radulovic

NHPCO, Vice President of Communications

703-837-3139

jradulovic@nhpco.org


For more information visit, http://www.nhpco.org