Letter to President Obama

Hospice Community Urges President Obama to Stop Funding Cuts

Cuts Beginning October 1 Will Reduce Access to Care for Dying Americans

(Alexandria, VA) – Today, 3,524 hospice providers from across the country sent a letter to President Barack Obama urging him to stop cuts to the Medicare hospice benefit beginning on October 1, 2009.

The cuts threaten to jeopardize availability of the compassionate and high-quality care that 1.5 million patients and their family caregivers receive from hospice providers each year.

In addition to the letter, more than 500 providers of the hospice community submitted comments to the Centers for Medicare and Medicaid Services (CMS) on how the cuts will cause them to decrease services, reduce staffing, and in some cases, close their programs.

This follows two Congressional letters sent to President Obama by 45 U.S. Senators and 171 U.S. Representatives, demonstrating that he has strong, bipartisan support to stop the cuts in hospice funding.

The cuts come from a 2008 federal rule that eliminates a component of the Medicare hospice benefit known as the budget neutrality adjustment factor (BNAF). Members of the hospice community have been calling and emailing the Administration requesting that implementation of this rule be stopped.

“The sheer number of hospice programs represented by this letter and those recently sent by Members of Congress should send a strong message to the White House about the urgency in stopping these cuts,” said J. Donald Schumacher, president and CEO of NHPCO.

Earlier this year, President Obama and Congress approved a moratorium on the hospice funding cuts that expires on September 30, 2009. Without further action, hospice reimbursements will drop by 3.1 percent, leaving hospice programs, particularly smaller and rural ones, facing cutbacks in services and possible closure.

Hospice is a proven Medicare cost saver. In 2007, an independent, Robert Wood Johnson Foundation-funded study by Duke University found that hospice reduced Medicare costs by $2,300 per patient, saving more than $2 billion per year.

Hospice is also considered to be the model of high-quality care at the end of life. Research from NHPCO shows that 98 percent of families served by hospice are willing to recommend its care and services to others.

For more information about NHPCO’s efforts to protect hospice funding, please visit NHPCO’s Advocacy Web page at: nhpco.org/advocacy.

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Contact:Angie Truesdale

Ph: 703-647-5163

atruesdale@nhpco.org

Jon Radulovic

Ph: 703-837-3139

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org

ABC News to Host White House Town Hall - NHPCO provides information

NHPCO Provides Information to ABC News in Preparation for White House Forum

To: NHPCO Membership
From: NHPCO Executive Office
Date: June 24, 2009

ABC News will be hosting a Healthcare Reform Town Hall Meeting this evening, June 24, at the White House. The program will be moderated by Diane Sawyer and Charlie Gibson and will feature a cross section of Americans asking President Obama questions about healthcare issues as they relate to their personal needs. NHPCO provided information on end-of-life care to ABC News producers and helped the news team working on this town hall meeting to find additional professional contacts in the field. A special thanks to our members who assisted with this effort.

While we don’t expect to hear from a hospice patient or family member in this town hall meeting, a good deal of content has been provided and the value of hospice has been expressed by the news team. We hope there will be further attention that focuses on the important work that we are all committed to. As providers of hospice and palliative care, we understand the importance of end-of-life care in healthcare provision and NHPCO is committed to making sure this critical topic is included in discussions of healthcare reform.

For those interested in this general town hall meeting, we encourage you to watch the program on your ABC affiliate station; the program is scheduled to be broadcast live at 10:00pm ET.

Thank you.

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For more information visit, http://www.nhpco.org

Comments from Provider Needed to Protect Rates!

To: NHPCO Membership
From: NHPCO Regulatory Team
Re: June 16, 2009

The rates for hospice will be cut by 3.2% in October, and an additional 1% the following year unless CMS halts its plans to phase out the Budget Neutrality Adjustment Factor (BNAF) in the hospice wage index. Have you done everything you can to tell CMS to eliminate this rate reduction? Did you know that CMS has received NO comments from providers so far on this proposed rule? Regulators could take this lack of response from the hospice community as an indication that rate cuts will not present any problems for providers.

Act now…. Time is short...Comments are due next Monday, June 22...Tell your story about how the rate cut is affecting you and your hospice program. Here’s how...

How You Can Help
Key Issue and Talking Points: FY2010 Proposed Hospice Wage Index
Sample Letter

How You Can Help

Review the talking points below and submit your comments on the proposed rule to CMS. When preparing comments, please refer to file code CMS-1420-P. Comments must be received no later than 5:00 pm on Monday, June 22, 2009.


Electronic Comments:
The fastest and easiest way to submit comments would be electronically; visit http://www.regulations.gov/fdmspublic/component/main?main=SubmitComment&o=0900006480968c04 and follow the instructions to comment. Make sure you reference the document number: CMS-1420-P.


Written Comments:
You may mail written comments to the following address ONLY. Please allow sufficient time to ensure that mailed comments are received before the close of the comment period.

Centers for Medicare & Medicaid Services
Department of Health and Human Services
Attention: CMS–1420–P
P.O. Box 8012
Baltimore, MD 21244–8012

Express Mail:
You may send written comments (one original and two copies) to the following address ONLY.

Centers for Medicare & Medicaid Services
Department of Health and Human Services
Attention: CMS–1420–P
Mail Stop C4–26–05
7500 Security Boulevard
Baltimore, MD 21244–1850

Key Issue and Talking Points

Issue: FY2010 Proposed Hospice Wage Index

CMS proposes to continue its phase-out of the BNAF over the next two years, with a 75% reduction in FY 2010 and a complete phase-out in FY 2011.

Member Talking Points:

1. A 75% reduction in the BNAF is equal to a rate reduction of 3.2 % in FY2010, beginning October 1, 2009, and an additional one percent reduction in FY 2011, ultimately resulting in a rate reduction of approximately 4.2% for most hospices.
   Describe any direct impact the proposed rate cut will have on:
   - Patient and family services, such as: (services cut back, services discontinued, etc.)
   - Reductions in service area;
   - Employee layoffs;
   - Higher case loads;
   - Any other negative impact on program services because of the reimbursement cuts.
   
2. In a time of economic uncertainty and loss, with escalating costs (gas prices are on the rise again), a rate cut is exactly the wrong action for CMS to take.
   
3. CMS ought to encourage more patients and families to elect hospice care so that they will receive the care they need and deserve, and save the Medicare system money.

NHPCO will submit comprehensive comments but that is not enough. It is imperative that Regulators hear from members of the hospice community. It is especially important that you explain the impact these rate cuts will have on staffing and patient services.Thank you for your ongoing efforts to protect hospice!

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Note: NHPCO Regulatory Team issued a comprehensive Alert and Call to Action on June 9 that goes into more detail and looks at some of the broader issues. That alert is available on the NHPCO Web site.

For more information visit, http://www.nhpco.org

Elizabeth Edwards Presented with Person of the Year Award

Elizabeth Edwards Presented with Person of the Year Award by National Hospice and Palliative Care Organization at National Conference

(Alexandria, Va) – Minutes after Elizabeth Edwards was presented with NHPCO’s Person of the Year Award, she took a moment at the podium to look at her notes as a shout came from the audience, “We love you!” A wide smile brightened her face as the audience of 1,600 broke out in spontaneous applause, filling the room with positive energy and optimism that was reinforced by Edwards’ remarks.

Edwards received NHPCO’s Person of the Year Award in recognition of her work as a fierce advocate for improved and accessible healthcare. In addition, she was acknowledged for her courage in the face of serious illness and life’s challenges and her willingness to share lessons learned from her experiences.

J. Donald Schumacher, NHPCO president/CEO, honored Edwards at the April 23rd opening session of the organization’s annual Management and Leadership Conference in Washington, DC.
The Person of the Year Award honors an individual outside of the hospice and palliative care community who is a true supporter of the hospice cause.

“Mrs. Edwards is rallying for changes to the healthcare system that will improve access, quality and—for those facing the end of life—comfort and dignity. Her personal experience in coping with cancer, caring for aging and ill parents, and her professional work in the legal and policy areas have made her a passionate proponent for change,” Schumacher said in his introduction.

A key message Edwards brought to the assembled leaders from hospice and palliative care programs across the nation was the obligation we all have of making sure that every American gets the care they need, when they need it, wherever they are.

Edwards stressed that an individual facing illness should never be defined by his/her medical condition. This philosophy—that puts the person at the center of care and emphasizes the dignity and individuality of all people—is one shared by hospice and palliative care providers.

A poignant moment came at the conclusion of her plenary address when she said she knew that one day she would need hospice care as a patient, and she thanked the attendees and all hospice professionals who care so compassionately for patients and families at the end of life.

She received a standing ovation and then graciously spent the next two hours signing autographs and copies of her book, Saving Graces: Finding Solace and Strength from Friends and Strangers.

Edwards served as the Honorary Chair of the National Hospice Foundation gala held the following Friday evening, which was attended by 600 guests. NHF’s annual gala is a philanthropic event supporting efforts to expand and improve care at the end of life.

As attention turns to the release of her new book and her publicized appearance on Oprah, NHPCO salutes Edwards for her efforts to advance care and compassion.

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Contact:

Jon Radulovic

Vice President, Communications

703-837-3139

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org

Worldwide Palliative Care

New International Alliance Launched to Address Urgent Needs of Palliative Care Patients Worldwide

(Alexandria, Va – NHPCO) – Today marks the launch of the Worldwide Palliative Care Alliance (WPCA), a new global action network designed to focus exclusively on hospice and palliative care development worldwide.

More than 100 million people and their families worldwide need palliative care and support each year, however, it is estimated that only seven per cent actually receive it. The need for palliative care is often greatest in low and middle income countries where more than 70 percent of all cancer deaths occur and where the HIV burden is the highest.

The WPCA is an alliance of national and regional hospice and palliative care organizations, bringing together people around the world with a shared vision of universal access to quality palliative care. This includes the National Hospice and Palliative Care Organization based in Alexandria, Virginia. With more than 34,000 members, NHPCO is the preeminent leadership organization in the U.S. representing hospice and palliative care providers and professionals.

“WPCA will provide a global voice to achieve the goal of universal access to quality palliative care,” said J. Donald Schumacher, NHPCO president and CEO, who is attending the launch of the WPCA at the 4th Worldwide Summit of National Associations of Hospice and Palliative Care in Vienna, Austria, today.

“Hospice and palliative care is still unavailable to many of those in need, especially in the developing world, with millions of people dying in pain and distress every year,” said Dr Cynthia Goh, co-chair of the WPCA, from the Asia Pacific Hospice Palliative Care Network. “Only 15 percent of the world’s countries have hospice and palliative care that is integrated with general healthcare so the formation of the WPCA is a tremendously positive step forward in helping to meet an overwhelming need.”

National hospice and palliative care organizations have been informally meeting every two years since 2003 to address this need—this group has now formally become the WPCA.

“The formation of the WPCA signifies the coming together of global palliative care leaders. Members of the WPCA will work together to support the development of hospice and palliative care services throughout the world so that all who need such care can access it. The WPCA also offers an opportunity to celebrate our diversity and share and learn from that richness to help provide palliative care for millions of people worldwide,” commented David Praill, co-chair of the WPCA, from the UK’s Help the Hospices.

For more information about WPCA, visit www.helpthehospices.org.uk/wpca

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WPCA Contact:

Bansree Takodra

Help the Hospices

Ph: 020 7520 8251

b.takodra@helpthehospices.org.uk

NHPCO Contact:

Jon Radulovic

NHPCO

703-837-3139

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org

Capitol Hill Day a Success

NHPCO CAPITOL HILL DAY PARTICIPANTS TO CONGRESS: PROTECT ACCESS TO COMPASSIONATE & HIGH-QUALITY END-OF-LIFE CARE

(Alexandria, Va) – More than 500 Hospice Advocates from across the country met with their U.S. Senators and Representatives yesterday, urging them to protect access to compassionate and high-quality end-of-life care for the more than 1.4 million patients and families who depend on hospice each year.

The meetings were part of the National Hospice and Palliative Care Organization’s annual Capitol Hill Day. In addition to the meetings in Washington, D.C., thousands of phone calls were made to Congressional offices by Hospice Advocates, who participated in NHPCO’s inaugural Virtual Hill Day.

Throughout their interactions with Congress, NHPCO Hill Day participants emphasized the value of hospice in their communities, provided state-level data on quality and family satisfaction with hospice services provided, and urged lawmakers to support efforts to stop cuts in Medicare hospice funding that threaten to close the doors of hospice programs around the country.

In 2008, the Centers for Medicare and Medicaid Services (CMS) issued a regulation that eliminates a key component of the Medicare hospice reimbursement formula known as the budget neutrality adjustment factor (BNAF). The phased funding cut threatened 3,000 hospice provider jobs this year, as well as the survival of hospice programs, especially smaller and rural ones, across the country as the cuts were phased in. While a temporary moratorium on the hospice funding cuts was included in the American Recovery and Reinvestment Act of 2009, it expires on September 30 of this year. Just this week, CMS released a proposed FY2010 Hospice Wage Index rule that would incorporate a 75 percent reduction in the BNAF, which is a 3.1 percent reduction in overall hospice reimbursement. This development underscores the urgency in rescinding the CMS rule.

NHPCO Hill Day participants specifically asked Members of Congress to sign on to a bipartisan letter to President Barack Obama and to contact the Department of Health and Human Services about rescinding the 2008 CMS hospice funding cut before it goes into effect on October 1 of this year.

“This is a critical year for the hospice community, so it was important for our advocates to send a strong message to Capitol Hill about the importance of the high-quality services provided through hospice, and the fact that hospice is a cost-saver to Medicare. If these funding cuts are allowed to go forward, they will have a devastating effect on access to high-quality and compassionate end-of-life care,” said J. Donald Schumacher, president and CEO of NHPCO.
In 2007, an independent, Robert Wood Johnson Foundation-funded study by Duke University found that hospice reduced Medicare costs by $2,300 per patient, amounting to more than $2 billion in savings per year.

Hill Day kicks off NHPCO’s annual Management & Leadership Conference, which attracts more than 1,600 members of the hospice community from all over the nation. Two hundred additional members of the hospice community joined the Hill Day participants for a reception honoring Hospice Champions on Capitol Hill at the new U.S. Capitol Visitor Center. Later in the week, the hospice community will also hear from Nancy-Ann DeParle, Director of the White House Office of Health Care Reform, and Elizabeth Edwards when she is recognized as NHPCO’s Person of the Year.

For more information about NHPCO’s Capitol Hill Day, please visit: www.nhpco.org/advocacy.

Media Contact:
Sara Perkins
Manager of Public Policy Communications
Ph: 703-837-3155
sperkins@nhpco.org

24th Management and Leadership Conference

Healthcare Reform, Advocacy, FDA Session and More on Agenda at National Hospice Leadership Conference in DC

DeParle, Edwards, FDA, Capitol Hill Day all highlights of NHPCO Management and

Leadership Conference April 22-25

(Alexandria, Va) – Over 1,600 hospice and palliative leaders, industry experts, and providers will gather to discuss the importance of hospice and palliative care in the healthcare reform debate and carry the voice of the hospice and palliative care community to Capitol Hill.

Plenary speakers include White House health reform “czar” Nancy-Ann Min DeParle, Elizabeth Edwards, Patrick Lencioni, and J. Donald Schumacher, NHPCO president/CEO. They will discuss the how quality end-of-life care is critical to the wellbeing of our nation’s healthcare landscape.

Hospice advocates will bring important messages about end-of-life care to Capitol Hill on Wednesday reminding legislators that hospice provides more care that costs less to dying Americans and their families.

The Food and Drug Administration will participate in a special listening session to discuss the impact of opioid availability. Hosted by NHPCO, AAHPM, CAPC, and HPNA, this session will allow participants to ask questions about the FDA’s plans regarding opioid production.

NHPCO’s Management and Leadership Conference will feature more than 80 concurrent workshops, awards, networking opportunities, and more. Highlights include:

• Hospice Capitol Hill Day – Wednesday, April 22, an all day event ending with a reception at the Capitol Visitor’s Center beginning at 5:00pm.


• Elizabeth Edwards – “Reforming Healthcare and Improving End-of-Life Care: Awakening Our National Conscience,” Thursday, April 23, 8:30am. Mrs. Edwards will also receive NHPCO’s Person of the Year Award.


• Special FDA Listening Session – to discuss opioid availability, Thursday, April 23, 12:15-1:15pm.


• Nancy-Ann Min DeParle, Director of the White House Office of Health Care Reform – to discuss health care reform and hospice/palliative care, Friday, April 24, 8:30am.


• Patrick Lencioni – “The Five Dysfunctions of a Team,” Friday, April 24, 9:00am.


• National Hospice Foundation Gala and Awards – “Bricks and Diamonds,”Friday, April 24, 6:30 – 11:00pm. Omni-Shoreham Hotel, Regency Ballroom.
  

Advocacy in Action: Mobilizing People and Organizations to Lead Change

National Hospice and Palliative Care Organization24th Management and Leadership ConferenceApril 22-25, 2009Omni-Shoreham Hotel, Washington, DC
Those interested in attending may register at the conference registration desk.

Credentialed members of the media are invited. To RSVP prior to conference, contact Jon Radulovic. During conference, please check in at conference registration desk. Additional conference info available at www.nhpco.org/MLC2009.

Contact:

Jon Radulovic, vice president communications

Ph: 703-837-3139

Cell: 571-259-5026

jradulovic@nhpco.org

For more information visit, http://www.nhpco.org